Keystone 2 - Lived Experience Archives

From Participants to Partners: Reconceptualising Authentic Patient Engagement Roles in Youth Mental Health Research

Prebeg et al. (2023) explore how young people with lived experience can be authentically engaged as partners in youth mental health research.

Involving Children and Young People in Research

Keystone 2 - Lived Experience

Methods

NIHR North East & North Cumbria: Resources to support the involvement of children and young people in research.

The Parent Carer Research Network Guide for Researchers

Keystone 2 - Lived Experience

Guidelines

Guide for researchers. Co-creators include parents, carers and researchers.

Quick Reference Guide: Co-production with Young People (British Psychological Society)

Keystone 2 - Lived Experience

Guidelines

Guide to co-production with young people, featuring actionable tips and useful resources.

Co-production with Young People: TRIUMPH Youth Advisory Group

Keystone 2 - Lived Experience

Methods

Engaging young people and the impact on research.

10 for 10: Working as a Co-researcher: Shaping Young People’s Mental Health Research

Keystone 2 - Lived Experience

Methods

Insight into co-research, with a focus on diversity, equality, and inclusion considerations.

10 for 10: Involving Young People in Research

Keystone 2 - Lived Experience

Methods

How to meaningfully engage with young people, from planning to training and support for young people and researchers.

Emerging Minds – Our Research Challenges

Keystone 2 - Lived Experience

Methods

How to effectively collaborate in order to improve young people’s mental health research.

Co-Designing a Digital App to Support Young People’s Patient and Public Involvement and Engagement (VoiceIn): Development and Usability Study

Keystone 2 - Lived Experience

Case Studies Methods

Description of how the VoiceIn app and digital platform were codeveloped.

Participatory Translational Science of Neurodivergence: Model for Attention-deficit/hyperactivity Disorder and Autism Research

Keystone 2 - Lived Experience

Methods

Description of a new participatory model of translational research.

A Framework for Remotely Enabled Co-design with Young People: Development and Application with Neurodiverse Children and their Caregivers

Keystone 2 - Lived Experience

Case Studies Methods

Creation of a novel engagement framework for remote co-design.

Cultivating Participatory Processes in Self-harm App Development: A Case-study and Working Methodology

Keystone 2 - Lived Experience

Case Studies

A case study describing the co-development of an adapted digital version of an existing Card-Sort Task for Self-harm research tool (CaTS-App).

The Process of Co-design for a New Anxiety Intervention for Autistic Children

Keystone 2 - Lived Experience

Case Studies Methods

Description of a co-design process, used in the development of a new anxiety intervention.

No Evidence Synthesis About Me Without Me: Involving Young People in the Conduct and Dissemination of a Complex Evidence Synthesis

Keystone 2 - Lived Experience

Methods

Report on a children and young person’s advisory group (CYPAG) input into a systematic review.

Guidance on Co-producing a Research Project

Keystone 2 - Lived Experience

Guidelines

Explanation of how the NIHR Centre for Engagement and Dissemination define the co-production of a research project.

Reflections and Recommendations of a Co-produced Qualitative Study with Young People who have Experience of Mental Health Difficulties

Keystone 2 - Lived Experience

Methods

A qualitative study, exploring young peoples’ perceptions on the feasibility of using technology to detect mental health deterioration.

GRIPP2 Reporting Checklists: Tools to Improve Reporting of Patient and Public Involvement in Research

Keystone 2 - Lived Experience

Guidelines

Research to develop guidelines aimed to enhance the quality, transparency, and consistency of patient and public involvement (PPI) in research.

Moving from Co-design to Co-research. Engaging Youth Participation in Guided Qualitative Enquiry

Keystone 2 - Lived Experience

Methods

Inclusion of young people in qualitative research.